Authors: John Donvan and Caren Zucker
Genre: popular science, history
Genre: popular science, history
I picked up this book as I was curious and wanted to know more about autism and I was not at all disappointed.This one is about the many people involved in autism- the
doctors, the parents and the patients themselves. The story spans over more
than eighty years, mostly covering the happenings in the U.S. and England.
The authors start of with the story of the first autistic
child that was brought to the attention
of Kanner; the psychiatrist who coined the term ‘autism’. It then moves on from
there, describing how various theories floating among psychiatrists and
researchers shaped the public attitude towards autism. Throughout the book one
sees both kinds of examples- good instances where a new teaching technique
proved useful to the autistic children and their parents cope with the
disorder; and also bad theories like that of the vaccine scare which did more
harm than good. As one reads on in the book, one realises that this story does
not have one hero, neither are there any bad guys of the traditional sense.
Even those that caused harm had good will at their hearts, most of the time.
One also comes to realise how important it is to accept theories and
alternative therapies only when backed up by concrete and scientific results-
this lesson creeps up again and again throughout the book- in the refrigerator mother
theory, with the facilitated communication etc. Although there are many heroes
in this narrative, a large part of them are parents of autistic children,
driven into action to help their own and other children like them. These driven
parents formed the first societies and help groups as well formed some early
groups to fund autism research. Towards the end of the book and the turn of the
century, the autistic people themselves took over the stage to voice their
opinions about ongoing research and policies. We have indeed come a long way
from the day the disorder was first described and named.
I really liked the way the authors have put together the
whole chain of events, which are as complicated as the disorder itself is. They
have managed to bring out the highlights of each era and described each
scenario perfectly. The writing style is quite engaging; largely because of the
moving personal accounts that bring the point home. By the end of it, I was left with a greater understanding of the struggles the autistic people go through and also a heightened appreciation for autism research. This book is a must for
anyone interested in knowing more about autism itself.
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